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- Thematic: No
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- IT
- Thematic: No
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:CSIC Multidisciplinary, Science General, Agriculture, Food and VeterinaryCSICOAI-PMH URL: https://digital.csic.es/dspace-oai/request
This is the institutional repository of the Spanish National Research Council (CSIC) that provides access to the scientific output produced by CSIC researchers. the interface may be read in English or Spanish.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9f95a0a5af052bffce5c89917335f67&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9f95a0a5af052bffce5c89917335f67&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Italy Compatibility:OpenAIRE PubRepos v4.0Partners:UniSS MultidisciplinaryUniSSOAI-PMH URL: https://iris.uniss.it/oai/openaire4
This site provides access to the output of the University of Sassari and of research centres of North Sardinia. Some items are not available as full-text, such items are clearly marked. The interface is available in Italian or English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::2bd7f907b7f5b6bbd91822c0c7b835f6&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::2bd7f907b7f5b6bbd91822c0c7b835f6&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of GroningenUniversity of GroningenAll Research products
arrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::8bf1211fd4b7b94528899de0a43b9fb3&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::8bf1211fd4b7b94528899de0a43b9fb3&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:Hanze UASHanze UASAll Research products
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This site provides access to the research outputs of the institution. Users may set up RSS feeds. The interface is in Spanish.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::09b15d48a1514d8209b192a8b8f34e48&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::09b15d48a1514d8209b192a8b8f34e48&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:IMDEA Networks InstituteIMDEA Networks InstituteOAI-PMH URL: http://eprints.imdea-agua.org:13000/cgi/oai2
This site provides access to the research outputs of IMDEA AGUA. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::7c2c48a32443ad8f805e48520f3b26a4&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::7c2c48a32443ad8f805e48520f3b26a4&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Italy Compatibility:Not yet registeredPartners:UNIPMNUNIPMNAll Research products
arrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c0c783b5fc0d7d808f1d14a6e9c8280d&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c0c783b5fc0d7d808f1d14a6e9c8280d&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Maastricht University, University Library, VU, NIOO, Dataverse, University of Groningen +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesMaastricht University, University Library,VU,NIOO,Dataverse,University of Groningen,Universiteit Utrecht, Universiteitsbibliotheek,Trimbos Institute,Leiden University,DANS,4TU.Federation,LIS,Utrecht University
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:TU Delft MultidisciplinaryTU DelftOAI-PMH URL: https://oai-pmh.tno.nl/OaiPmh
This site is an institutional repository providing access to the research output of the Delft University of Technology, including student dissertations and theses. The site interface is in English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9892a989183de32e976c6f04e700201&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9892a989183de32e976c6f04e700201&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=fairsharing_::8164d892d7aea8f1875df07f4d82ffd0&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:CSIC Multidisciplinary, Science General, Agriculture, Food and VeterinaryCSICOAI-PMH URL: https://digital.csic.es/dspace-oai/request
This is the institutional repository of the Spanish National Research Council (CSIC) that provides access to the scientific output produced by CSIC researchers. the interface may be read in English or Spanish.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9f95a0a5af052bffce5c89917335f67&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9f95a0a5af052bffce5c89917335f67&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Italy Compatibility:OpenAIRE PubRepos v4.0Partners:UniSS MultidisciplinaryUniSSOAI-PMH URL: https://iris.uniss.it/oai/openaire4
This site provides access to the output of the University of Sassari and of research centres of North Sardinia. Some items are not available as full-text, such items are clearly marked. The interface is available in Italian or English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::2bd7f907b7f5b6bbd91822c0c7b835f6&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::2bd7f907b7f5b6bbd91822c0c7b835f6&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of GroningenUniversity of GroningenAll Research products
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This site provides access to the research outputs of the institution. Users may set up RSS feeds. The interface is in Spanish.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::09b15d48a1514d8209b192a8b8f34e48&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::09b15d48a1514d8209b192a8b8f34e48&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Spain Compatibility:OpenAIRE 3.0 (OA, funding)Partners:IMDEA Networks InstituteIMDEA Networks InstituteOAI-PMH URL: http://eprints.imdea-agua.org:13000/cgi/oai2
This site provides access to the research outputs of IMDEA AGUA. Users may set up RSS feeds to be alerted to new content. The interface is available in English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::7c2c48a32443ad8f805e48520f3b26a4&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::7c2c48a32443ad8f805e48520f3b26a4&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Italy Compatibility:Not yet registeredPartners:UNIPMNUNIPMNAll Research products
arrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c0c783b5fc0d7d808f1d14a6e9c8280d&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c0c783b5fc0d7d808f1d14a6e9c8280d&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Maastricht University, University Library, VU, NIOO, Dataverse, University of Groningen +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesMaastricht University, University Library,VU,NIOO,Dataverse,University of Groningen,Universiteit Utrecht, Universiteitsbibliotheek,Trimbos Institute,Leiden University,DANS,4TU.Federation,LIS,Utrecht University
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=10.25504/fairsharing.denvnv&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu - Institutional Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:TU Delft MultidisciplinaryTU DelftOAI-PMH URL: https://oai-pmh.tno.nl/OaiPmh
This site is an institutional repository providing access to the research output of the Delft University of Technology, including student dissertations and theses. The site interface is in English.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9892a989183de32e976c6f04e700201&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=opendoar____::c9892a989183de32e976c6f04e700201&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu
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