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- Data Repository United Kingdom Compatibility:Not yet registeredPartners:Harvard University Library Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, Literary StudiesHarvard University Library
re3data: r3d100010720
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic, Germany, Poland Compatibility:Not yet registeredPartners:MU, MPDL, UW, Archaeolinguistic Research Group, Max Planck Institute for the Science of Human History +1 partners Humanities and Social Sciences, Ancient Cultures, HistoryMU,MPDL,UW,Archaeolinguistic Research Group,Max Planck Institute for the Science of Human History,RZG
re3data: r3d100013698
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:KIT, DFG, University of Paderborn, IKB, IMT +1 partners Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, HumanitiesKIT,DFG,University of Paderborn,IKB,IMT,IKB
re3data: r3d100013095
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:Maastro ClinicMaastro ClinicOAI-PMH URL: https://www.cancerdata.org/oai
This site provides access to datasets on Cancer research.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:UK Research Council, HALCyon, MRC, LHA Humanities and Social Sciences, Education Sciences, Research on Socialization and Educational Institutions and ProfessionsUK Research Council, HALCyon,MRC,LHA
re3data: r3d100011841
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:University of Hamburg, Department of Microbiology and Biotechnology, University of Stuttgart, Institute of Biochemistry and Technical Biochemistry, BMBF Life Sciences, Basic Biological and Medical Research, BiochemistryUniversity of Hamburg, Department of Microbiology and Biotechnology,University of Stuttgart, Institute of Biochemistry and Technical Biochemistry,BMBF
re3data: r3d100013766
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:NIBSC Life Science, Preclinical Studies, stem cellNIBSC
The UK Stem Cell Bank (UKSCB) facilitates the use and sharing of quality-controlled stem cell lines to support scientific research and clinical development of stem cell therapies. The work of the UK Stem Cell Bank covers three main areas: banking for all UK-derived human embryonic stem cell lines, research in the standardisation, quality and safety of human pluripotent stem cell (hPSC)-based products, and regulation regarding international best practice, policies and guidelines relating to stem cell use and regulation around the world.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:IrissIrissAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:Not yet registeredPartners:Netherlands Genomic Initiative, CHLA Phenomics, Biomedical Science, GenomicsNetherlands Genomic Initiative,CHLA
The Mitochondrial Disease Sequence Data Resource (MSeqDR) is a centralized genome and phenome bioinformatics resource built by the mitochondrial disease community to facilitate clinical diagnosis and research investigations of individual patient phenotypes, genomes, genes, and variants. It integrates community knowledge from expert‐curated databases with genomic and phenotype data shared by clinicians and researchers.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:IMI Translational Medicine, Biomedical Science, MedicineIMI
re3data: r3d100013816
MDM-Portal (Medical Data-Models) is a meta-data registry for creating, analysing, sharing and reusing medical forms, developed by the Institute of Medical Informatics, Heidelberg University Hospital in Germany. see also https://doi.org/10.1055/s-0044-1786839 Electronic forms for documentation of patient data are an integral part within the workflow of physicians. A huge amount of data is collected either through routine documentation forms (EHRs) for electronic health records or as case report forms (CRFs) for clinical trials. This raises major scientific challenges for health care, since different health information systems are not necessarily compatible with each other and thus information exchange of structured data is hampered. Software vendors provide a variety of individual documentation forms according to their standard contracts, which function as isolated applications. Furthermore, free availability of those forms is rarely the case. Currently less than 5 % of medical forms are freely accessible. Based on this lack of transparency harmonization of data models in health care is extremely cumbersome, thus work and know-how of completed clinical trials and routine documentation in hospitals are hard to be re-used. The MDM-Portal serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It already contains more than 25,000 system-independent forms (CDISC ODM Format, www.cdisc.org, Operational Data Model) with more than 600,000 data-elements. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc. A growing user community will lead to a growing database of medical forms. In this matter, we would like to encourage all medical researchers to register and add forms and discuss existing forms.
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- Data Repository United Kingdom Compatibility:Not yet registeredPartners:Harvard University Library Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, Literary StudiesHarvard University Library
re3data: r3d100010720
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For further information contact us at helpdesk@openaire.eu - Data Repository Czech Republic, Germany, Poland Compatibility:Not yet registeredPartners:MU, MPDL, UW, Archaeolinguistic Research Group, Max Planck Institute for the Science of Human History +1 partners Humanities and Social Sciences, Ancient Cultures, HistoryMU,MPDL,UW,Archaeolinguistic Research Group,Max Planck Institute for the Science of Human History,RZG
re3data: r3d100013698
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:KIT, DFG, University of Paderborn, IKB, IMT +1 partners Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, HumanitiesKIT,DFG,University of Paderborn,IKB,IMT,IKB
re3data: r3d100013095
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For further information contact us at helpdesk@openaire.eu - Thematic Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:Maastro ClinicMaastro ClinicOAI-PMH URL: https://www.cancerdata.org/oai
This site provides access to datasets on Cancer research.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:UK Research Council, HALCyon, MRC, LHA Humanities and Social Sciences, Education Sciences, Research on Socialization and Educational Institutions and ProfessionsUK Research Council, HALCyon,MRC,LHA
re3data: r3d100011841
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:University of Hamburg, Department of Microbiology and Biotechnology, University of Stuttgart, Institute of Biochemistry and Technical Biochemistry, BMBF Life Sciences, Basic Biological and Medical Research, BiochemistryUniversity of Hamburg, Department of Microbiology and Biotechnology,University of Stuttgart, Institute of Biochemistry and Technical Biochemistry,BMBF
re3data: r3d100013766
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:NIBSC Life Science, Preclinical Studies, stem cellNIBSC
The UK Stem Cell Bank (UKSCB) facilitates the use and sharing of quality-controlled stem cell lines to support scientific research and clinical development of stem cell therapies. The work of the UK Stem Cell Bank covers three main areas: banking for all UK-derived human embryonic stem cell lines, research in the standardisation, quality and safety of human pluripotent stem cell (hPSC)-based products, and regulation regarding international best practice, policies and guidelines relating to stem cell use and regulation around the world.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository United Kingdom Compatibility:Not yet registeredPartners:IrissIrissAll Research products
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, United States Compatibility:Not yet registeredPartners:Netherlands Genomic Initiative, CHLA Phenomics, Biomedical Science, GenomicsNetherlands Genomic Initiative,CHLA
The Mitochondrial Disease Sequence Data Resource (MSeqDR) is a centralized genome and phenome bioinformatics resource built by the mitochondrial disease community to facilitate clinical diagnosis and research investigations of individual patient phenotypes, genomes, genes, and variants. It integrates community knowledge from expert‐curated databases with genomic and phenotype data shared by clinicians and researchers.
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For further information contact us at helpdesk@openaire.eu - Data Repository Germany Compatibility:Not yet registeredPartners:IMI Translational Medicine, Biomedical Science, MedicineIMI
re3data: r3d100013816
MDM-Portal (Medical Data-Models) is a meta-data registry for creating, analysing, sharing and reusing medical forms, developed by the Institute of Medical Informatics, Heidelberg University Hospital in Germany. see also https://doi.org/10.1055/s-0044-1786839 Electronic forms for documentation of patient data are an integral part within the workflow of physicians. A huge amount of data is collected either through routine documentation forms (EHRs) for electronic health records or as case report forms (CRFs) for clinical trials. This raises major scientific challenges for health care, since different health information systems are not necessarily compatible with each other and thus information exchange of structured data is hampered. Software vendors provide a variety of individual documentation forms according to their standard contracts, which function as isolated applications. Furthermore, free availability of those forms is rarely the case. Currently less than 5 % of medical forms are freely accessible. Based on this lack of transparency harmonization of data models in health care is extremely cumbersome, thus work and know-how of completed clinical trials and routine documentation in hospitals are hard to be re-used. The MDM-Portal serves as an infrastructure for academic (non-commercial) medical research to contribute a solution to this problem. It already contains more than 25,000 system-independent forms (CDISC ODM Format, www.cdisc.org, Operational Data Model) with more than 600,000 data-elements. This enables researchers to view, discuss, download and export forms in most common technical formats such as PDF, CSV, Excel, SQL, SPSS, R, etc. A growing user community will lead to a growing database of medical forms. In this matter, we would like to encourage all medical researchers to register and add forms and discuss existing forms.
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