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- Data Repository United Kingdom Compatibility:Not yet registeredPartners:Bath Spa University Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsBath Spa University
re3data: r3d100012148
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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re3data: r3d100012495
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re3data: r3d100013589
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:WTSI Life Science, Protein domain, proteinWTSI
The Pfam database contains information about protein domains and families. For each entry a protein sequence alignment and a Hidden Markov Model is stored.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom, Austria Compatibility:Not yet registeredPartners:UKCEH, eLTER Environmental Science, Ecology, Ecosystem ScienceUKCEH,eLTER
re3data: r3d100012910
DEIMS-SDR (Dynamic Ecological Information Management System - Site and Dataset Registry) is an information management system for the discovery of long-term environmental research and monitoring facilities around the globe, along with the data gathered at those sites and the people and networks associated with them. DEIMS-SDR includes metadata such as site location, ecosystem, facilities, parameters measured and research themes.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:University of Reading Humanities and Social Sciences, Life Sciences, Natural SciencesUniversity of Reading
re3data: r3d100012064
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- Data Repository United Kingdom Compatibility:Not yet registeredPartners:Bath Spa University Humanities and Social Sciences, Fine Arts, Music, Theatre and Media Studies, LinguisticsBath Spa University
re3data: r3d100012148
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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re3data: r3d100013589
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:WTSI Life Science, Protein domain, proteinWTSI
The Pfam database contains information about protein domains and families. For each entry a protein sequence alignment and a Hidden Markov Model is stored.
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re3data: r3d100012910
DEIMS-SDR (Dynamic Ecological Information Management System - Site and Dataset Registry) is an information management system for the discovery of long-term environmental research and monitoring facilities around the globe, along with the data gathered at those sites and the people and networks associated with them. DEIMS-SDR includes metadata such as site location, ecosystem, facilities, parameters measured and research themes.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom Compatibility:Not yet registeredPartners:University of Reading Humanities and Social Sciences, Life Sciences, Natural SciencesUniversity of Reading
re3data: r3d100012064
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