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- Data Repository Netherlands, France Compatibility:Not yet registeredPartners:CLARIN, SGPI, CNRS, CGI, ATILF +2 partners Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,SGPI,CNRS,CGI,ATILF,HN,Université de Lorraine
re3data: r3d100011329
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, publicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden Compatibility:Not yet registeredPartners:MERGE, BECC, Swedish Research Council Natural Sciences, Atmospheric Science and Oceanography, Atmospheric ScienceMERGE,BECC,Swedish Research Council
re3data: r3d100014420
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re3data: r3d100012445
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden, Spain Compatibility:Not yet registeredPartners:World Values Survey, ASEP/JDS, WVSA Humanities and Social Sciences, Social Sciences, Social and Behavioural SciencesWorld Values Survey,ASEP/JDS,WVSA
re3data: r3d100010572
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For further information contact us at helpdesk@openaire.eu - Data Repository Japan, Sweden, United Kingdom Compatibility:Not yet registeredPartners:JST, International Neuroinformatics Coordination Facility, National Node of Japan, RIKEN Center for Brain Science, Integrative Computational Brain Science Collaboration Center, Neuroinformatics Unit, INCF, JSPS +2 partners Life Sciences, Zoology, Animal Genetics, Cell and Developmental BiologyJST,International Neuroinformatics Coordination Facility, National Node of Japan,RIKEN Center for Brain Science, Integrative Computational Brain Science Collaboration Center, Neuroinformatics Unit,INCF,JSPS,MEXT,RIKEN Center for Brain Science
re3data: r3d100011591
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re3data: r3d100010597
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- Data Repository Netherlands, France Compatibility:Not yet registeredPartners:CLARIN, SGPI, CNRS, CGI, ATILF +2 partners Humanities and Social Sciences, Linguistics, HumanitiesCLARIN,SGPI,CNRS,CGI,ATILF,HN,Université de Lorraine
re3data: r3d100011329
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, publicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden Compatibility:Not yet registeredPartners:MERGE, BECC, Swedish Research Council Natural Sciences, Atmospheric Science and Oceanography, Atmospheric ScienceMERGE,BECC,Swedish Research Council
re3data: r3d100014420
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re3data: r3d100012445
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Sweden, Spain Compatibility:Not yet registeredPartners:World Values Survey, ASEP/JDS, WVSA Humanities and Social Sciences, Social Sciences, Social and Behavioural SciencesWorld Values Survey,ASEP/JDS,WVSA
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For further information contact us at helpdesk@openaire.eu - Data Repository Japan, Sweden, United Kingdom Compatibility:Not yet registeredPartners:JST, International Neuroinformatics Coordination Facility, National Node of Japan, RIKEN Center for Brain Science, Integrative Computational Brain Science Collaboration Center, Neuroinformatics Unit, INCF, JSPS +2 partners Life Sciences, Zoology, Animal Genetics, Cell and Developmental BiologyJST,International Neuroinformatics Coordination Facility, National Node of Japan,RIKEN Center for Brain Science, Integrative Computational Brain Science Collaboration Center, Neuroinformatics Unit,INCF,JSPS,MEXT,RIKEN Center for Brain Science
re3data: r3d100011591
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union, Germany, United States, France Compatibility:Not yet registeredPartners:SRON, European Space Agency, ISO Data Centre, MPE, MPIN, IPAC +1 partners Natural Sciences, Astrophysics and Astronomy, PhysicsSRON,European Space Agency, ISO Data Centre,MPE,MPIN,IPAC,IAS
re3data: r3d100010597
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